Well my friends......it was not the news I was wanting to hear. My brain lesions have spread despite my Imuran treatment. Instead of only having them n the right frontal lobe and left side rear, they are now spread all throughout with exception of the base near my brain stem. I will begin infusion therapy in six weeks. I want to thank you all for your positive thoughts and prayers (Please keep them coming) as I begin my fight. Thank you again, love you all.
(This is a re-post) from my Facebook page that was posted as soon as I got home from my neuro appointment a few weeks ago. It has been very difficult for me and my family to deal with the news. It doesn't feel real. Right now, with all of the uncertainty that I face, it's terribly hard to come up with words for a Blog Post. I hope that you all understand. I am trying to stay positive so don't you worry about that. I am also praying a lot. At the moment I am having more trouble breathing and so my focus at this point is getting in to see the pulmonologist. I will keep you all posted as I can bare to. There may be a little time in between but I will always try to come back and spill.
Love you all. Thanks for your constant care, concern and prayer.
Heidi
Day to day dealings with this cruel and highly misunderstood disease.
