Sunday, July 7, 2013

Catching up....

Legs covered in calamine lotion due to a severe, painful itchy rash I suffered after exposure to the sun.

A flat flaky spot on my hand raised up after exposure to the sun. It hurt like a bruise.

swelling and drooping on the right side of my face upon waking up.

Full facial swelling including my nose. The swelling occurs so often that I have permanent creases next to the right of my nose and above my eyes.
 

I know it's been a while since my last post, but I suppose it's because it's been a bit uneventful for me in comparison to my children. My oldest child and only daughter, graduated from High School on the 19th of June. My middle child and oldest son Aaron is now an eigth grader and my youngest "DJ" is a big second grader now. Yay for all my babies!

As for me, I completed one whole month of Imuran treatment (100mg doses) without much ado (or no side effects.) I continue to suffer with the "Angio Edema" in my face and even began to see more swelling in my left ankle/foot. I have pretty severe back pain now, and what seem to be never ending charlie horses in my right leg. To top that off, my right foot is losing it's battle with whatever has been ailing it. I litterally lie in tears over the pain in my right foot. It seems to be the arch but I had an injury to the tiny bones on the top of my foot years ago, so not sure if that has anything to do with it. I do believe at this point that with everything I go through, my foot is what will be the cause for need of a wheelchair first. As it stands, I can only bear weight on my foot for ten to fifteen minutes at a time without being in excruciating pain. I am starting to notice increased pain in my hips and the muscles of my thighs now, and after a long period of time, my right shoulder seems to be giving in again. I move slowly and carefully to say the least.

Recently, about a week ago, my rheumatologist increased my Imuran to 150 mg. a day. I waited until after a camping trip (which I did not do well on) to start the new dose which was Friday the fifth. Already, I am having nausea and came close to vomiting (which I never do.) I go through this each day, a few hours after taking the med. Today, I could not get up. I slept from 10:30 Saturday evening through 7:45 tonight. I just could not wake up. That's a bit worrisome for me. I will bring that up with my neurologist at tomorrows appointment. That's a bit more than I planned to say about myself, I have some sharing to do about my little guy "DJ" but will give him his own post.
Gentle Hugs~ Heidi

11 comments:

  1. It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...
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